By Sarah Ailish McLoughlin
Publisher of The Index Line | Founder of Strategic Self-Advocacy™ | Architect of Alternative Systems for Those Left Out of the Original
Not All Infrastructure Is Progress
We’re told that new platforms, systems, and reforms mean change is happening.
But some infrastructure doesn’t solve exclusion — it reinforces it.
Because if you build a new system with the same assumptions, the same decision-makers, the same timelines and tools…
You’re not redesigning access.
You’re rebuilding the wall.
What Is “Infrastructure Without Reform”?
It’s when a government or organisation announces a major new initiative — a portal, framework, funding round, hotline, app, or reporting tool — but:
The frame looks new.
But the logic is familiar.
Performative Infrastructure in Practice
Some examples we’ve documented under Strategic Self-Advocacy™:
Each one claims to be about equity.
But the structure ensures the usual players win.
Why Familiar Failure Gets Funded
Because familiarity feels safe.
Because funding is tied to deliverables, not outcomes.
Because institutions are rewarded for replication, not repair.
It’s easier to:
What Does Reform Actually Require?
🟡 Design with those excluded from the start
🟡 Allow for refusal, non-linearity, and slowness
🟡 Resource trauma-informed governance, not just comms campaigns
🟡 Back alternative formats, not just alternative phrasing
🟡 Fund authorship — not just consultation
Real reform means ceding power, not rebranding it.
Why This Matters
Because every time exclusion is rebranded as “innovation,”
it becomes harder for people to challenge it.
If the infrastructure is new, the assumption is that change happened.
But if the foundations are extractive, the harm continues — with less accountability.
Questions to Ask Before Launching New Systems
The McLoughlin Charter and Semantic Infrastructure
Strategic Self-Advocacy™ includes more than public critique.
It includes frameworks for semantic infrastructure — systems that centre meaning, memory, authorship, and care.
The McLoughlin Charter protects survivor-led design, and holds infrastructure to ethical account.
Infrastructure must not just exist.
It must be just.
#InfrastructureWithoutReform #PerformativeAccess #GatekeepingByDesign #SurvivorLedDesign #DisabilityJustice #FundingReform #McLoughlinCharter #StrategicSelfAdvocacy #TraumaInformedGovernance #EpistemicSovereignty