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Strategic Self-Advocacy Infrastructure

for NDIS Participants

A participant-led digital coordination platform to mitigate systemic communication overload

"Only 38.1% of working-age NDIS participants report the ability to advocate for themselves"

— Australian Institute of Health and Welfare (2024)

Research Foundation

This research integrates systems theory, cognitive load theory, and disability justice frameworks to examine how infrastructure design can scaffold agency.

Strategic Self-Advocacy Infrastructure for NDIS Participants

This paper investigates the development of a participant-led digital coordination platform—referred to as the NDIS Navigator—as a targeted intervention to mitigate the systemic communication overload experienced by participants of the National Disability Insurance Scheme (NDIS).

Publication Details

Author:
Sarah Ailish, M.
Publisher:
The Index Line
Year:
2025
Database:
Zenodo Record
License:
CC-BY 4.0

Key Research Findings

📊

Communication Overload

NDIS participants experience significant administrative complexity and fragmented information flows that impede self-advocacy.

🎯

SSA Methodology

Strategic Self-Advocacy provides a survivor-authored model for accessible system reform and participant authorship.

🛡️

Infrastructure Design

Centralized, role-based dashboards and permissions-aware communication flows significantly reduce overload and support ethical participation.

Abstract

This paper investigates the development of a participant-led digital coordination platform—referred to as the NDIS Navigator—as a targeted intervention to mitigate the systemic communication overload experienced by participants of the National Disability Insurance Scheme (NDIS). While the NDIS was designed to promote autonomy, many participants are encumbered by administrative complexity, role confusion, and fragmented information flows.

Only 38.1% of working-age participants report the ability to advocate for themselves (Australian Institute of Health and Welfare [AIHW], 2024), indicating a significant gap between policy aspirations and practical realities. This study integrates systems theory, cognitive load theory, and disability justice frameworks to critically examine how infrastructure design can scaffold agency.

The research introduces the Strategic Self-Advocacy (SSA) methodology as a survivor-authored model for accessible system reform, aligning platform functionality with relational coordination, semantic transparency, and participant authorship. Findings indicate that centralized, role-based dashboards and permissions-aware communication flows significantly reduce overload and support ethical participation. The paper concludes by proposing scalable applications for SSA-informed infrastructure across public systems.

Theoretical Framework

Three foundational theories inform the Strategic Self-Advocacy methodology

Systems Theory

Examines how NDIS participants navigate complex interdependencies between service providers, support workers, and administrative systems.

Cognitive Load Theory

Addresses the mental burden of managing multiple communication channels and complex information flows in NDIS coordination.

Disability Justice

Provides survivor-authored framework for accessible system reform that centers participant autonomy and ethical participation.

NDIS Navigator Platform

A participant-led digital coordination platform designed to reduce communication overload

Role-Based Dashboards

Centralized interfaces tailored to different participant roles and needs, reducing complexity and information overload.

Permissions-Aware Communication

Smart communication flows that respect privacy while enabling effective coordination between all stakeholders.

Semantic Transparency

Clear, accessible language and visual design that reduces cognitive load and enhances understanding.

Participant Authorship

Survivor-led design processes ensuring the platform reflects lived experience and actual participant needs.

Scalable applications proposed for SSA-informed infrastructure across public systems