A practical guide for Australians with lived experience who want to start a charity
If you're thinking about starting a charity based on your lived experience—whether that's mental health, disability, homelessness, addiction recovery, or any other challenge you've faced—understanding what the law means by "charitable purpose" is absolutely crucial. It's not just legal jargon; it's the foundation that determines whether your organisation can become a registered charity and access the benefits that come with it.
Let's break down what Australian law actually says, and more importantly, what it means for you.
In Australia, charitable purposes are defined by the Charities Act 2013. This legislation sets out 12 specific categories of charitable purpose, and your organisation must fit into at least one of them to be recognised as a charity.
Here's where it gets important for lived experience charities: your organisation must provide a public benefit. This means your activities must benefit the community or a significant section of it—not just you, your family, or a closed group of members.
Key Point: Your lived experience is valuable and can inform your charity's work, but the charity itself must exist to help others, not primarily to support yourself or a private group.
You've experienced homelessness and want to start a charity that provides support services, advocacy, and education to people experiencing homelessness in your community. The charity is open to anyone who needs help, and your lived experience informs how you design and deliver services.
You want to start an organisation that provides financial support exclusively to you and a small group of friends who have experienced homelessness. The benefit is private rather than public.
Understanding and correctly defining your charitable purpose isn't just about ticking boxes—it has real, practical implications:
Registered charities can access significant tax benefits, including income tax exemption and potentially Deductible Gift Recipient (DGR) status, which allows donors to claim tax deductions for their donations. This can make a huge difference to your fundraising capacity.
Many government grants, philanthropic trusts, and corporate giving programs are only available to registered charities. Without proper charitable status, you'll be locked out of significant funding opportunities.
Being a registered charity signals to the public, donors, and partners that your organisation is legitimate, accountable, and operating for genuine public benefit. This trust is invaluable, especially when you're starting out.
Charitable status provides certain legal protections and governance frameworks that can protect both your organisation and you personally as a founder.
Blurred Lines Between Personal and Public Benefit: It's natural to want to help yourself and others in similar situations, but the ACNC (Australian Charities and Not-for-profits Commission) will look closely at whether the primary purpose is public benefit or private benefit.
Solution: Clearly separate your personal recovery or support needs from the charity's work. Consider accessing support as a service user separately from your role as a founder or board member.
While charities can engage in advocacy related to their charitable purpose, they cannot have a primary purpose of promoting a political party or candidate. This can be a grey area for social justice-focused lived experience charities.
Solution: Frame your advocacy work as advancing your charitable purpose (e.g., advancing health, promoting human rights) rather than as political campaigning. You can advocate for policy change, but it must be connected to your charitable purpose.
Peer support groups where members support each other are valuable, but they may not meet the public benefit test if they're primarily for mutual benefit of members.
Solution: If you want to run peer support as part of a charity, ensure it's open to the public (not just members), and consider offering additional services that clearly benefit the broader community, such as education, advocacy, or outreach programs.
When you're drafting your organisation's governing documents (constitution or trust deed), you need to clearly articulate your charitable purpose. Here's how to do it effectively:
Look at the 12 categories above and identify which one(s) best describe what you want to achieve. Most lived experience charities will fit into:
Your purpose statement should be specific enough to guide your work but broad enough to allow flexibility. Here's a template:
"The purpose of [Organisation Name] is to advance the health and social welfare of people affected by [specific issue] by:
All activities will be for the public benefit and open to anyone who needs support, regardless of their background."
In your governing documents and ACNC application, clearly explain:
Here's the good news: your lived experience is not a barrier to starting a charity—it's actually your greatest asset. The ACNC and the law recognise that people with lived experience often create the most effective, responsive, and innovative charities.
What matters is that you:
Remember: Thousands of successful Australian charities were founded by people with lived experience. Your story, your insights, and your passion are exactly what the sector needs—you just need to channel them through the right legal structure.
If you're serious about starting a lived experience charity, here's what to do next:
Starting a charity is challenging, but it's also one of the most rewarding ways to turn your lived experience into lasting change. Understanding charitable purpose is your first step toward building something that will help countless others.
You've got this.
Get an ABN in Australia with this free, step-by-step guide for community groups, charities and small organisations. Includes Easy Read, worksheets and tips to avoid common mistakes.
Your guide to NDIS self-advocacy: know your rights, communicate your way, prepare with confidence, and find support. Empower your journey
with practical tips and resources.
Self-advocacy is about speaking up for yourself, knowing your rights, and getting the support you need. This guide will help you become a
confident self-advocate in your NDIS journey.
New platforms. New frameworks. New reforms.
We call it progress — but what if the same systems are simply rebuilding the walls they promised to tear down?
Queensland's Quiet Reckoning — examining transparency and systemic inequities in health service funding and oversight within Queensland’s advocacy ecosystem.
AI Tools for Advocates – justice-first, access-led tools that translate bureaucracy into plain language, empowering carers, advocates, and people with lived experience. Explore free, trauma-informed AI support for NDIS, education, and strategic advocacy.
Practical guide to building effective coalitions with clear purpose, inclusive governance, and accessible practices. Includes free templates for MOUs, meeting trackers, and accessibility checklists.
Discover how storytelling transforms advocacy—learn the narrative strategies that forced action, restored $500,000 in NDIS funding, and made change impossible to ignore.
Strategic Self-Advocacy (SSA) empowers marginalised individuals to navigate complex systems with precision, using documentation, institutional language, and lived experience as tools for change. Discover the SSA™ Handbook — a field guide for changemakers.
Step-by-step guide to making NDIS complaints. Learn how to contact the NDIS Commission, use AAC complaint cards, get advocate help, and protect your rights as an NDIS participant
Too often, advocacy is led by people who consult, research, and theorise, but haven’t lived the experience. That gap matters. Because no amount of theory can replace the precision and urgency that comes from surviving a system and still choosing to help others through it.
Before it was a framework, Strategic Self-Advocacy™ was a coping mechanism. It came from a simple but deeply human place: the need to be heard without being harmed. For those of us navigating systems built without us in mind, 'speaking up' was never just about raising our voices. It was about survival.
The Gatekeeper Problem: How well-meaning advocates can block change—and what to do when those who claim to support you become barriers to progress.